Just a quick update from our scare today that included a trip to the ER by ambulance. From what we can tell, Jackson had a seizure today while in class at preschool. Thankfully he goes to preschool at the church and Stephanie and I are just down the hallway. However, this seizure wasn’t like most of the ones from the past. This seizure took place without the rhythmic convulsions like seizures of the past. This is probably what scared us more than anything. His eyes were open, but he just had a blank stare on his face. It was like he wanted to respond, but couldn’t respond to us so just stared. Very scary!
The school had already called 911 when I got there. The paramedic weren’t any real help. It was almost as if they did’t know what to do, or how to deal with a little kid. Once we got to the hospital, the waiting game began. After some Tylenol and Motrin, a long hard nap, and 3 hours in the ER, Jackson returned to his normal self. Praise Jesus!
We are now home, watching Sesame Street and keeping Tylenol and Motrin in his system to keep another fever from spiking causing another seizure. Please continue to pray for our little guy. We believe that one day, God is going to use his story in a powerful way.
Thanks to all that prayed, came by, text, or left messages on my Facebook. We are so thankful for your friendship and feel loved and blessed to have you in our lives!
Jackson will go to the Dr. tomorrow to make sure it is just a cold and not the onset of an infection before we make the trek to Missouri this weekend.
Don’t be hate’n the video may be old but the words are true and so powerful!
I know the writer of this song faked his illness, but this song ministers to my heart every time I hear it. It really has become an anthem that I sing, to myself, every time Jackson gets sick. The words are so powerful and expresses so much of the things we feel and pray for Jackson. But it reminds us of where our hope and healing lies!!!
Update, Jackson is in a regular room now, things looked like they were getting better last night, until about 11:00pm when he started having some difficulty breathing and they put him back on O2. We were hoping to go home today but have been told we can’t leave until Jackson is eating on his own (which he is not doing), off of O2, and has been monitored in both a day and night setting.
Today, he acts like he is sick. He wants to be held all the time, which is not like Jackson, and his eyes are red and puffy. His stomach seems to be bloated, it’s really stiff, from what we think to be air. But we are not doctors just parents. They are getting ready to suction his nose right now. The nurse agrees that Jackson looks worse today than yesterday. So I don’t exactly know what that means yet. I guess we will see how the day goes . . . kinda scary to be honest!
We continue to pray for God’s healing, strength, perseverance for ourselves, and wisdom for the doctors! We are so thankful for friends and family!
Well today marked our 5th ER visit with Jackson since early September. We really thought that we were moving past this, but it just goes to show that at anytime things can change so much. Jackson was completing a follow-up sleep study from his surgery that removed his tonsils and adenoids. While there he had about a 3-5 minute seizure. He was taken to Plano Presby for follow-up evaluation. The only bad thing is he still has the electrodes on his head from the sleep study. We have tried to get them off but those things are like super glued on his head and the Baby Shampoo Presby said would take it out didn’t work, nor did peanut-butter, and Vitamin E oil hasn’t worked to well either.
Other than that Jackson is doing fine now, and the family is sleeping. All of us have been up since 1:30am this morning. The only reason I am able to stay awake right now is I had coffee this morning. Don’t ask, I am not a coffee drinker, but I saw some old guys drinking it and was inspired to have a cup. That’s all it took since I have not had caffeine since early October.
We have had the unfortunate opportunity now of seeing every Hospital in Plano, Allen, and Frisco. If I had to rate them on our experience, Stephanie and I would have to say that Children’s Medical Center in Plano has been by far the best with Centennial Medical Center in Frisco being a close second. Both of these places have provided excellent care to Jackson and given us quick info and results. Here is what our list would look like from best to worst care and experience. Please keep in mind we have never had to wait in any ER waiting room at any of these hospitals. This is based strictly on the care we felt was provided
- Children’s Medical Center Plano – great ER, great Nurses, great overnight staff, ok food (2 ER visits, 2 nights stay)
- Centennial Medical Center Frisco – great ER, great Nurses, great overnight staff, ok food (1 ER visit, 1 night stay)
- Medical Center Plano – old facility, decent care, not good food (2 days and 1 night stay)
- Plano Presby – Less than desired ER, Higher expectations than what was reality based on peoples references, Jackson became a pin cushion when getting blood-work done, took extra long to get results. (1 ER visit which was an all night deal)
- Allen Presby – Less than desired ER, Jackson became a pin cushion when getting blood, not kid friendly, great Labor and Delivery unit, awesome food. (Labor and Delivery, 10 Night stay in NICU, 3 ER visits, 2 nights stay)
If you were to look at Jackson right now, beside seeing a lubed head with electrodes stuck to it you would see a normal boy. In fact, today on the way home from the hospital he was dancing and singing to the music on the radio. I am so thankful that he is ok, and God has taught me a ton through this process, but I sure would like to not have to experience this anymore! To see Jackson in minutes go from one extreme to the other is painful, and exhausting as a Dad.
Lord Jesus, will you meet us where we are, comfort our fears, provide for our greatest needs, strengthen our family, and help us raise two boys to bring glory to your Name!
The last 24 hours have been hectic. Seeing anyone have a seizure is never fun, let alone a young child and at that your own. Jackson seems to be coming back to his normal self after having two seizures and meds trying to stop/stabilize him. Yesterday he slept most of the day do to the fatigue a seizure brings to the body. Today, we felt like we were trying to tame a wild animal. Jackson wanted to walk but he was so topsy he couldn’t. This made it very difficult to keep him happy.
The good news, the doctor said it seems that Jackson’s metabolism is fast causing the seizure medicine he is on to go through his body faster. So we were sent home with a high dosage 3 times a day. The doctor also gave us some rectum Valium in-case Jackson did go into a seizure again that lasted longer than five minutes. That kinda scares me, but I am sure in the moment adrenaline will kick in and allow us to do it!
I have learned a lot about seizures over the last year, most of the learning’s happening in the last 48 hours. Yesterday, one of the links under my post was another blog on seizures with some very helpful insight to what to do for someone seizing. Here is a link to the blog, below is the article,
Consider this a public service announcement. Seizures are something most people know very little about. And I’m finding that most people don’t have any interest to learn. The thing is, anyone can have a first unexpected seizure, and if it’s you, hope that someone around knows what to do.
Not everyone having a seizure will froth at the mouth, or even shake or tremble. Some seizures involve just ‘zoning out’ for a short period (those ‘absence seizures’ don’t usually require any immediate medical attention). But most other seizures will involve either going limp and falling to the ground, or going rigid, or both. The body may also shake – either gently or more violently. So what do you do?
- Calm down. Most seizures are not medical emergencies, and your calmness is the best thing for the situation.
- Make sure there’s nothing sharp or hard near the person seizing. They should be in a rather comfortable place where they can’t fall (i.e., not the edge of the Grand Canyon, not a concrete sidewalk, no scissors or knifes nearby)
- DO NOT put anything in their mouth. It is a myth that they could bite their tongue, swallow it, or anything like that. Do not attempt to rescue them from a myth.
- If possible, it’s best for them to be on their side, especially if there are any indications that they might vomit.
- Look for a clock and make a mental note of what time the seizure started. Also note what time it ends.
- When the person stops seizing, they will be completely out of it for anywhere from 5 to 15 minutes, depending on a lot of variables. Do talk to them to judge their level of consciousness. Also note what time they ‘come back’ to themselves.
- If it was a first seizure, the person will need immediate medical attention to rule out potential causes like chemical ingestion and the like. But if the person has had seizures before, they probably don’t need medical attention unless the seizure itself lasted more than 10 minutes, or they don’t ‘come back’ to themselves after 15-20 minutes.
There you have it, folks. It’s really not that hard. The basics are – nothing in the mouth, stay calm. I hope that if my son should have another seizure, and it happens when he’s not with me, that someone around will know what to do. You could be that person – if not to my son, then to someone else.
We are thankful for the prayers and visits. It really allowed us to see how loved we are and how the power of prayer provides strength. One of our small group leaders came by and brought gifts for Jackson and Josiah. Joe loves the nerf dart gun and Jackson slept with his singing sea horse all the way home. Here are some pics from our 4th Hospital visit in 2 1/2 months! Just got a call today that we have a sleep study in two weeks. I am hoping that will be the end of a very long medical nightmare and Jackson can return to the healthy boy he was before all this came upon us.
“Give all your worries and cares to God, for he cares about you.” 1 Peter 5:7
I need this verse to be real in my life today. Today has been a roller coaster of emotion. Just yesterday in one of my meetings I thanked some of our staff for their prayers, patients, and grace that they have shown our family over the last two months. If you are a reader of the blog you know that the last two months have been filled with ER visits and stress. Over the last two months Jackson has visited the the ER 4 different times and today, he was taken by ambulance.
As I was spending time with God this morning Stephanie yells from me from our room. I run in there and Jackson is having a full blown seizure. I call 911 thinking it would be the fastest way to get care. In the back of my head I am thinking he will stop seizing at anytime, but he doesn’t. When the EMT’s arrive Jackson is still seizing, they tried to stabilize him but couldn’t get him stabilized. They take him to the closest hospital to get the medical attention he needs.
Once there he stabilizes for a little while but then has another seizure. This caused the doctor and vurse to rule out a febrile seizure. The type of seizure that comes on when you temperature goes from point a to point b really fast. Jackson has had this type of seizure before. It is really scary for those watching but they say it doesn’t do any damage to the child. So, we don’t know exactly what we are facing now. Jackson seizure today had to last at least 15-20 minutes, unless time stood still, I don’t think that is an exaggeration. The good news is that the CT Scan and Chest X-Ray came back good. They say he has a red ear so that is a sign of an ear infection (I hope that isn’t an indication or start of a new problem). Our neurologist wanted us to be transferred to a hospital he has jurisdiction over so they moved us to Medical Center of Plano, where we have been all afternoon as Jackson sleeps off the meds and the affects of the seizure. We still haven’t talked to our neurologist so we are taking that to mean maybe it’s not that bad.
So we sit and wait for answers. Thanks to all that have prayed with us and for us today. We do believe God is still in control. Please continue to pray for us.
Several People have been praying and asking about us so I thought i would let everyone know our status.
We think we have made it out of the tuff days of Jackson’s recovery. Days 4-7 were really hard, especially at night. Jackson who normally takes meds very easily and drinks like you wouldn’t believe, started to refuse everything because his throat hurt so bad. Thankfully, Nana has been here for the duration of Jackson’s surgery and recovery. It is so helpful having an experienced Mother (not to take away from my wife at all, but Nana thought of stuff that just showed her experience of raising 3 kids). It will be sad to see her leave tomorrow, maybe she will stay through Sunday, who knows!
Josiah has been a great big brother. He prays everyday for our house to sell and for Jackson’s throat to heal. This week he has memorized Hebrews 13:8 and just today we started working on John 14:6. So when you see him ask him what his memory verse is. He is very excited about doing this and also asks every morning if we can have our early time. That’s what Josiah calls my quiet time. Today he joined me. It was so awesome! I think God is going to use Josiah in a big way!
I have been developing new habits when it comes to my health. I have totally cut out cafine. Which is huge for a guy that would drink coke for breakfast, at every meal, and late into the night. With this and adding a walking regiment to my week i feel better and have lost about 10 pounds. While I walk I have been listening to some podcast of Steven Furtick, Perry Noble, Ed Young Jr, Erwin McManus, Matt Chandler, and Andy Stanley. It is still knew but I am loving it and being challenged and inspired.
Stephanie will celebrate her B-day on Tuesday. She deserve way more than I can give her, but maybe we can celebrate with a date night. It would be good just for us to be able to get away without the kids and be able to focus on each other for a couple of hours. Lord knows all of our attention has been on other things over the last couple of weeks. We had such a great time in Cali to come home to such a intensly stressfull and scary time with Jackson.
We continue to pray that God would be our provider. He has been so good to us so far and as I listened to Perry Nobles talk during the one prayer series I want to live dangerously for Jesus. I want to be a person that focus on what God is going to do next with great excitement and expectation.