Home > Family, Health, Prayer > Jackson Update – 12.13.11

Jackson Update – 12.13.11

December 13, 2011 Leave a comment Go to comments

Many of you have been asking how our youngest son Jackson has been doing.  I have tried to keep everyone in the know through twitter … but, 140 characters can only keep you so informed. So here is whats been happening over the last 4 months.

In March my family and I moved from Texas back to Missouri where I serve as the Community Pastor at First Baptist Church Harvester.  With Jackson seizures we knew we needed a good Neurologist that could take on the care that he received in Texas.  We found a great Neurologist and started to see him in June.

On August 8th, Jackson had two back-to-back seizure within an hour.  This had never happened before so he was taken to the hospital via ambulance. He was released after a couple of hours with an anti-seizure prescription and appointment with our Neurologist.

When meeting with our Neuro, He recommended putting Jackson on a new medication since his currents ones were at pretty high levels.  We began that process mid August and were seizure free till November as we made the transition from Depakote to Lamictal leaving his dose of Keppra the same.

On Monday, November 7th, Jackson had three seizures within an hour.  On his third seizure we called the ambulance as each seizure seemed to intensify.  He was given an anti-seizure medication and watched for a couple of hours.  We were released with a 3 day anti-seizure prescription (a form of Valium) and instructed to call our neurologist.

The very next day, Jackson had two seizures and a third one in the ambulance outside the house.  This was 6 seizures in a 24 hour period.  After the third seizure had stopped, the Ambulance took Jackson to Children’s STL where our Neurologist and team of Dr. could make sure nothing else was going on.  Jackson was admitted and kept on a pretty high dose of clonazepam for 24 hours and then a lower dose the next day.  We were released on that Thursday after spending 2 nights there for monitoring, with instructions to increase his new medication and a 3 day prescription of clonazepam.

I wish I could say it stopped there but, it didn’t.  Early the Friday morning after Thanksgiving, Jackson had a seizure while he was sleeping.  Thankfully it was just one seizure this time but it was a seizure none the less. Our neurologist made a final increase to his medication to get him at the level that he wanted him to be on in hopes that Jackson would have less seizures. However, that has not been our experience with this new medication yet.

In the last week, Jackson has had 7 seizures.  We believe be had one this morning while he was watching TV because of the way he is sleeping as I type this post. His Neurologist has made another adjustment and  increased his medication again.  From what we are told, it takes about 4 days for any changes in medication to take full effect.  Jackson is on a very low dose of this new medication and has room to be increased on it quiet a bit. We are prayerful that this is just a transition in medicine that will eventually, once we have the right levels and dosage, have better long-term results and allow Jackson to not have seizures.

Please continue to pray for Jackson.  We believe God has a great plan for him and us through this journey and we are trusting Him even when we have more questions right now than answers.

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Categories: Family, Health, Prayer Tags: , ,
  1. December 13, 2011 at 12:51 pm

    Praying for you and your family – that God would bring about healing and comfort to all of you through this incredibly tough time but also that God would continue to receive glory and honor through you and your family’s response to this.

  2. Lisa Born
    December 13, 2011 at 1:50 pm

    Praying for Jackson and healing. Peace and rest for you and Stephanie.

  3. Shelly
    December 14, 2011 at 9:25 pm

    Thanks for the updates, Dan. I am praying for sweet Jackson and your family.

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