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Back Again!!

December 10, 2008 Leave a comment Go to comments

Well today marked our 5th ER visit with Jackson since early September.  We really thought that we were moving past this, but it just goes to show that at anytime things can change so much.  Jackson was completing a follow-up sleep study from his surgery that removed his tonsils and adenoids.  While there he had about a 3-5 minute seizure.  He was taken to Plano Presby for follow-up evaluation.  The only bad thing is he still has the electrodes on his head from the sleep study.  We have tried to get them off but those things are like super glued on his head and the Baby Shampoo Presby said would take it out didn’t work, nor did peanut-butter, and Vitamin E oil hasn’t worked to well either.

Other than that Jackson is doing fine now, and the family is sleeping.  All of us have been up since 1:30am this morning.  The only reason I am able to stay awake right now is I had coffee this morning.  Don’t ask, I am not a coffee drinker, but I saw some old guys drinking it and was inspired to have a cup.  That’s all it took since I have not had caffeine since early October.

We have had the unfortunate opportunity now of seeing every Hospital in Plano, Allen, and Frisco.  If I had to rate them on our experience, Stephanie and I would have to say that Children’s Medical Center in Plano has been by far the best with Centennial Medical Center in Frisco being a close second.  Both of these places have provided excellent care to Jackson and given us quick info and results.  Here is what our list would look like from best to worst care and experience.  Please keep in mind we have never had to wait in any ER waiting room at any of these hospitals.  This is based strictly on the care we felt was provided

  1. Children’s Medical Center Plano – great ER, great Nurses, great overnight staff, ok food (2 ER visits, 2 nights stay)
  2. Centennial Medical Center Frisco – great ER, great Nurses, great overnight staff, ok food (1 ER visit, 1 night stay)
  3. Medical Center Plano – old facility, decent care, not good food (2 days and 1 night stay)
  4. Plano Presby – Less than desired ER, Higher expectations than what was reality based on peoples references, Jackson became a pin cushion when getting blood-work done,  took extra long to get results.  (1 ER visit which was an all night deal)
  5. Allen Presby – Less than desired ER, Jackson became a pin cushion when getting blood, not kid friendly, great Labor and Delivery unit, awesome food.  (Labor and Delivery, 10 Night stay in NICU, 3 ER visits, 2 nights stay)

If you were to look at Jackson right now, beside seeing a lubed head with electrodes stuck to it you would see a normal boy.  In fact, today on the way home from the hospital he was dancing and singing to the music on the radio.  I am so thankful that he is ok, and God has taught me a ton through this process, but I sure would like to not have to experience this anymore!  To see Jackson in minutes go from one extreme to the other is painful, and exhausting as a Dad.

Lord Jesus, will you meet us where we are, comfort our fears, provide for our greatest needs, strengthen our family, and help us raise two boys to bring glory to your Name!

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  1. December 10, 2008 at 12:15 pm

    Awww dang. I was hoping y’all were through the worst of this seizure bit. I will be praying for you all! Wish I could do more-

    Kerri

  2. Stephanie Gould
    December 10, 2008 at 2:41 pm

    Thanks girl. You have done more than you know. Your a great friend and have shared encouraging words with me that have really helped. Having a great Godly friend on her knees for my little boy means the world to me. I am truely blessed to have you as a friend.

  3. lovemykids2
    December 10, 2008 at 3:47 pm

    My daughter had her tonsils, adnoids and tongue clipped last Nov. at 2 1/2 years. She had sleep apnea, snored and was up all night. I started her on a nutritional suppliment and would love to introduce it to you so you know there is hope out there for your child. Please be open to health and wellness as sometimes these doctors can’t figure it out.
    I look forward to speaking with you.

  4. Stephanie Gould
    December 10, 2008 at 4:51 pm

    I would love to hear more. Thank you for sharing. We are very open to different options. I come from a family who is very all natural if possible. Here is my email address, stephanie.gould@findgrace.org. Thanks again for thinking of us.

  5. Jada Harris
    December 10, 2008 at 5:18 pm

    Me and the rest of the family are praying for you every night, Dan. God will help, and he has a plan for this somewhere along the way. Hope he feels better soon

  6. Carol Beck
    December 10, 2008 at 5:54 pm

    Just got finished lifting Jackson and the entire family up once again.

    Wow Dan, I just thought of a new gig. In addition to doing a fabulous job leading our youth, you could start a side job. Instead of Hotels.com, you could invent Hospitals.com!

    I have to agree about Presby Allen. I stayed there through labor and delivery and it was awesome! I stayed there for 7 nights with Meredith at age 2 and also spent MANY times at what I called the “Saturday night freak show in the ER” there as well. Not so awesome ;o(.

    My prayer for Jackson is that his Creator, Healer, All-knowing and All-sufficient God will quickly reveal to the dr.s whatever they need to know, and provide peace and assurance in the meantime.

    Love you guys!

  7. Kristy
    December 10, 2008 at 11:24 pm

    Poor little guy! So glad he is on his way back to normal. Good to know Centennial got a thumbs up from you on your review.. considering we are close to that hospital! They were always good to Jay’s dad in the ER there too!

    Can I ask you a question? How does Stephanie manage to look so darn pretty at 1:30 a.m.? You are one lucky guy to have such a pretty wife!

  8. December 11, 2008 at 10:17 am

    I am sorry to hear that you all are still dealing with this with such frequently…I pray for you all (as much as I remember) daily.

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